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More than two years after announcing sheβd been diagnosed with a rare neurological condition, Celine Dion is looking to the future with optimism.
The five-time Grammy winner appears on the cover of Vogue Franceβs May issue and, in the accompanying interview, opens up about her experience with stiff person syndrome.
βI havenβt beat the disease, as itβs still within me and always will be,β Dion told the publication. βI hope that weβll find a miracle, a way to cure it with scientific research, but for now I have to learn to live with it.β
After noting that she undergoes βathletic, physical and vocal therapyβ five days a week, she added: βThe way I see it, I have two choices. Either I train like an athlete and work super hard, or I switch off and itβs over, I stay at home, listen to my songs, stand in front of my mirror and sing to myself. Iβve chosen to work with all my body and soul, from head to toe, with a medical team. I want to be the best I can be. My goal is to see the Eiffel Tower again!β
Stiff-person syndrome (SPS) is defined by the National Institutes of Health as βa rare, progressive neurological disorderβ that can cause muscle spasms. The condition can be so debilitating that some patients develop a hunched posture, eventually preventing them from walking or moving independently at all. Though symptoms can be kept under control with treatment, there is no cure.
Dion first revealed that sheβd been diagnosed with stiff-person syndrome in December 2022, and noted that the condition had impacted both her livelihood and ability to perform live.
The French Canadian chanteuse has maintained a low profile and stayed largely absent from social media since her announcement. In recent months, however, sheβs made a number of public appearances. In February, she was greeted with a standing ovation at the 2024 Grammy Awards, where she presented Taylor Swift with the award for Album of the Year.
As to whether fans can expect her to resume her performing career anytime soon, Dion told Vogue France that a return to the concert stage was βthe dream,β but did not specify a time frame in which that may be possible.
βI canβt answer thatβ¦ Because for four years Iβve been saying to myself that Iβm not going back, that Iβm ready, that Iβm not ready,β she said. βAs things stand, I canβt stand here and say to you: βYes, in four months.β I donβt know… My body will tell me.β
Dion is expected to share more details about her health in a forthcoming documentary. Due out June 25 on Amazon Prime Video, βI Am: Celine Dionβ is billed as βa snapshot of a pivotal timeβ for the five-time Grammy winner, as she βnavigates her journey toward living an open and authentic life amidst illness.β